In the past month, ALL ALS has participated in three collaborative webinars, which focused on highlighting the importance of observational research. At each webinar, several ALS observational research programs shared key study characteristics and participant expectations. In addition, speakers outlined the significance of having multiple observational studies and how cross-collaboration between programs is leading to critical advancements in ALS drug and therapy development.
On May 28th, I AM ALS hosted a “Natural History Studies: Join the Research” webinar, which highlighted ALL ALS and the ALS Therapy Development Institute’s (ALS TDI) ARC Study.
On June 5th, the NEALS Consortium hosted a “Stronger Together: How Collaboration is Driving ALS Research Forward” webinar, which highlighted ALL ALS, the CDC National ALS Registry, Target ALS, and the FDA ALS Natural History Consortium.
On June 23rd, the ALS Association hosted a “From Experience to Insight: Advancing ALS Research Together” webinar, which highlighted ALL ALS, ALS Focus, and the CDC National ALS Registry.