ALL ALS Consortium

Access for ALL in ALS

Funded by the National Institutes of Health (NIH), the Access for ALL in ALS Consortium (ALL ALS), is a community of two coordination centers and 35 research sites across the United States, conducting a combined longitudinal natural history study and biomarker collection study for ALS.

ALL ALS research engages with people currently living with ALS, potential ALS gene carriers, and family members, friends, and community partners to better understand all stages of ALS disease progression.

ALL ALS STUDIES BY THE NUMBERS

Total Number of Active Sites

Total Participants Enrolled

Fully Remote Participants Enrolled

Number of Blood Sample vials*

Number of CSF Sample vials*

* The number of vials collected per visit and sample volumes are dependent on sample type and can vary between visits. Not all participants are providing CSF samples.

ALL ALS STUDIES

ALL ALS is leading the charge in ALS research with two groundbreaking studies.

The ALL ALS PREVENT study focuses on understanding the earliest stages of the disease in people at risk, while the ASSESS ALL ALS study collects vital data on individuals living with ALS to track disease progression and identify new biomarkers.

PREVENT ALL ALS

Research into the natural history of ALS, including its earliest manifestations in asymptomatic ALS gene carriers, is a top priority.

PREVENT ALL ALS Study

These research efforts recruit potential asymptomatic ALS gene carriers, and are working to result in knowledge that can lead to more informative, targeted, and personalized drug development, taking the field one step closer toward the goal of halting, repairing, and/or preventing ALS.

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ASSESS ALL ALS

Our aim is to make research inclusive and accessible to all, not just those who can visit academic medical centers.

ASSESS ALL ALS Study

We work to remove barriers through new technology allowing for remote participation and collecting data from individuals with ALS and control participants. This study will set the new standard for how we learn about ALS, and we cannot do that without understanding your unique experience of ALS.