This peer-reviewed manuscript describes the structure and design of the Access for ALL in ALS research consortium. It goes into detail about research site selection, who is able to participate, what participation entails, and how data is secured and shared.
This poster provides an overview of the ALL ALS Participant Interest Form (PIF) and the Patient Navigation (PN) team and explains the process used to connect interested participants across the U.S. and Puerto Rico with study sites. It also discusses how the PIF has helped improve recruitment, increase engagement, and support enrollment across the ALL ALS network.
This poster provides an overview of the design, goals, and future directions of the ALL ALS Consortium. It also summarizes the eligibility requirements and research activities for the consortium’s two main studies, which enroll people living with ALS, healthy volunteers, and individuals at increased genetic risk for developing ALS and gives a snapshot of enrollment as of June 2025.
This poster provides a description of participants enrolled in ASSESS ALL ALS as of February 2026. It discusses participant demographics, geographic spread, and Veteran status. For people living with ALS, the abstract also provides information about baseline functional rating scores.
This poster describes the dual Clinical Coordination Center model that is central to how the ALL ALS Consortium operates. It discusses how collaboration between two coordinating institutions helped support study launch, site activation, and participant enrollment, while also highlighting the benefits and challenges of managing a large, nationwide research effort across two organizations.
This poster explores whether offering remote participation options expands access to research for people living with ALS. It compares the demographic, geographic, and clinical characteristics of participants enrolled on-site and remotely, including rural-urban distribution, Veteran status, and baseline functional scores.
This poster describes how the ALL ALS Consortium uses digital and remote research tools to make study participation more accessible for people living with ALS. It highlights the benefits of this approach, including reduced participant burden and expanded access to research, as well as some challenges related to technology use and study implementation.
This poster describes the design of PREVENT ALL ALS, a natural history study that collects data from people at increased genetic risk for developing ALS. It highlights the study’s goal of better understanding the earliest stages of ALS and provides a snapshot of enrollment and sample collection as of June 2025.
This poster discusses how the ALL ALS Consortium Outreach Team leverages partnerships and relationships within the ALS community to expand access to research opportunities. It provides an overview of enrollment efforts and highlights the strategies used to engage individuals, families, advocacy organizations, and healthcare providers across communities.