ALL ALS Resources

Advancing the future of ALS research

Participant and Family Resources

ALL ALS Brochures and Flyers

Click here to view and download general brochures and flyers with information about the ALL ALS research program.

Lumbar Punctures

Click here to learn more about lumbar punctures (spinal taps), including information on what to expect during the procedures and answers to some of the most frequently asked questions.

Genetic Testing Sub-Study

Click here to learn more about the genetic testing sub-study, which provides PREVENT participants with an optional genetic counseling and testing opportunity.

Data and Information Security

Click here to learn more about the differences between personal health information and clinical data and how ALL ALS is ensuring your data’s confidentiality and security.

DIGITIZE Assessments

Click here to learn more about the ALL ALS assessments that collect movement data from participants through digital health technologies.

ALL ALS Community Newsletter!

Keep up to date on the ALL ALS research program, including participant, site, and research updates.

Participant Interest Form