A Historic Moment for ALS Research: the ACT for ALS

Historic federal investment is actively evolving and advancing the ALS research landscape. In 2026, community members, advocates, and ALS organizations helped secure $313 million in federal funding for ALS research- the largest annual investment in the history of the disease. Since 2019, federal funding for ALS research has grown to more than $1.6 billion, after […]
2026 MDA Clinical & Scientific Conference

Date: March 8th-11th, 2026 In March, Emma Goldberg, PhD, ALL ALS’ Outreach Program Manager, attended the 2026 MDA Clinical & Scientific Conference in Orlando, FL. At the meeting, Emma presented two posters and shared exciting ALL ALS updates and insights with researchers, clinicians, and organizations. Additionally, Emma was able to connect with a variety of […]
ARC and ALL ALS Collaborative Webinar: Jan 2026

Date: January 21st, 2026 View the ARC and ALL ALS webinar slides below to learn more about the ALL ALS Consortium and the ALS Research Collaborative (ARC), two major ALS research initiatives that are working towards a shared goal: building a better understanding of ALS, so we can advance treatment development and improve quality of […]